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Rare diseases (RDs) are generally defined as affecting one in every 20,000, with 5,000–8,000 distinct conditions affecting millions globally.1 Diagnostic complexity and lack of awareness often lead to delayed diagnosis and treatment, averaging 5.6–7.6 years with poor outcomes.2 Centralizing expertise through specialized centres can improve diagnosis and outcomes, advance research and support patient advocacy. Global initiatives, such as those […]

NRAS’s mission and impact on the RA community: Ailsa Bosworth, National Rheumatoid Arthritis Society

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Published Online: Jan 17th 2024
https://touchmedicalmedia-1.wistia.com/medias/dcr2qr00g5

We had the pleasure of talking with Ailsa Bosworth, a patient advocate for rheumatoid arthritis (RA), and Founder and National Patient Champion for the National Rheumatoid Arthritis Society (NRAS), UK. In this interview, Ailsa explores NRAS’s profound impact on the RA community, and her role and experiences within the NRAS, and pivotal contributions to pioneering initiatives and projects in this field. NRAS’s innovative initiatives underscore their dedication to improving lives and fostering empowerment among those affected by rheumatoid arthritis. This interview enables a snapshot into the heart of NRAS’s mission and impact.

Questions:

  1. Could you share your journey to starting NRAS, the impact the society has had on the RA community, and some examples of successful initiatives or projects you have been involved in?
  2. Could you describe your role as NRAS’s National Patient Champion?

Disclosures: Ailsa Bosworth has nothing to disclose in relation to this video interview.

Support: Interview and filming supported by Touch Medical Media Ltd. Interview conducted by Katey Gabrysch.

Watch Ailsa Bosworth’s interview on her personal journey to diagnosis of seronegative rheumatoid arthritis

Click here for more content on rheumatoid arthritis

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