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Rare diseases (RDs) are generally defined as affecting one in every 20,000, with 5,000–8,000 distinct conditions affecting millions globally.1 Diagnostic complexity and lack of awareness often lead to delayed diagnosis and treatment, averaging 5.6–7.6 years with poor outcomes.2 Centralizing expertise through specialized centres can improve diagnosis and outcomes, advance research and support patient advocacy. Global initiatives, such as those […]

Ronald Van Vollenhoven, EULAR 2021: Challenges in Defining Remission in SLE

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Published Online: Jun 18th 2021

TouchIMMUNOLOGY got the opportunity to catch up with Prof. Ronald Van Vollenhoven (Amsterdam UMC, Amsterdam, the Netherlands) to discuss the final recommendations from the DORIS taskforce in defining remission in systemic lupus erythematosus.

The abstract ‘The 2021 DORIS Definition Of Remission In SLE – Final Recommendations from an International Task Force. (OP0296), was presented at the European Congress of Rheumatology 2021, 2-5 June 2021.

Questions

  1. Why has there been a lack of consensus over the definition of remission in systemic lupus erythematosus (SLE)? (0:14)
  2. What have been the limitations of the potential definitions of remission? (1:07)
  3. Could you tell us a little about the DORIS Taskforce, its members and objectives? (3:01)

Disclosures: Ronald Van Vollenhoven discloses receiving research support (institutional grants): BMS, GSK, Lilly, UCB; support for educational programs (institutional grants): Pfizer, Roche; consultancy, for which institutional and/or personal honoraria were received: AbbVie, AstraZeneca, Biogen, Biotest, Celgene, Galapagos, Gilead, Janssen, Pfizer, Servier, UCB; speaker, for which institutional and/or personal honoraria were received: AbbVie, Galapagos, Janssen, Pfizer UCB.

Support: Interview and filming supported by Touch Medical Media. Interview conducted by Victoria Jones.

Filmed as a highlight of EULAR 2021 (Virtual).

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